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Sickle Cell Not a Death Sentence, Say Experts
As the world commemorates World Sickle Cell Day, medical experts have revealed that over 50 million Nigerians carry the sickle cell trait, reaffirming the country’s unenviable status as having the highest global burden of the condition.
The alarming statistics were shared during a seminar organized in Ilorin, Kwara State by the Building Hope for Sickle Cell Foundation. The event brought together health professionals, survivors, government officials, and advocacy groups to discuss improved care and awareness.
A Call for Collective Action
Kwara State Commissioner for Health, Dr. Amina El-Imam, represented by Dr. Ajao Kasali, emphasized the urgent need for multi-sectoral efforts to improve care and reduce the burden of Sickle Cell Disease (SCD).
“By working together, we can rebirth hope for individuals and families affected by sickle cell disease and improve their quality of life,” El-Imam stated.
She disclosed that:
- 2–3% of Nigeria’s population suffers from SCD.
- About 150,000 babies are born with the disease annually.
- In Kwara, 25% of adults are carriers, while SCD prevalence among admitted children is 16.3%, the highest in recent comparative studies.
Grim Realities for Children
The commissioner noted that 50% to 90% of children born with SCD in sub-Saharan Africa die before age five, making it a major contributor to under-5 and neonatal mortality on the continent.
“It accounts for 20% of neonatal mortality and 5% of mortality in under-five children in Africa,” she said.
Government Support and Free Care
Dr. El-Imam added that Kwara State offers free medical care for sickle cell patients under its state health insurance scheme, including:
- Free vaccines
- Nutritional support
- Specialized management programmes
Survivors Share Hope, Call for Awareness
Alhaji Kadir Obasola-Jimoh, a survivor and retired chartered accountant, said his life proves SCD is not a death sentence.
“I’m over 60, retired from the CBN, and living strong. Being a carrier doesn’t mean you will die young or fail in life.”
Ajila Oladimeji-Kamar, CEO of the organizing foundation, and Toyeeb Lawal of the Dele Shittu Foundation, both stressed premarital screening, awareness, and the importance of public education.
Lawal announced plans for a free health screening of 1,000 people in the state as part of their awareness campaign.
Conclusion
World Sickle Cell Day in Nigeria serves as a crucial reminder of the silent public health crisis facing millions. While many challenges remain, the voices of survivors and advocates show that hope is real, and with the right care, policy, and awareness, sickle cell warriors can thrive.
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